Thursday, 31 October 2013
Wednesday, 30 October 2013
Thank you Caledonian University Nursing & Mental health Students
As a son who cared for his mum Joan for five years and would be awareness campaigner , I would just like to thank Caledonian university for inviting me over the last 3 weeks to speak to the Mental Health and Nursing Student.
Thank you for the incredibly kind messages I have received today and over the last few week from these inspiring students . I wish everyone of them the best in their journey ahead which ever field of car they work in.
Tuesday, 29 October 2013
Nov 29th Carers rights day event Dementia Carer Voices - Alliance Scotland &Scottish Dementia Clinical Research Network. November 29th
To mark the occasion, the ALLIANCE’s Dementia Carer Voices project is holding an event for Carers of People with Dementia in partnership with the Scottish Dementia Clinical Research Network.
The main focus of the session will be about highlighting the rights you are entitled to as a Carer, as well as opportunities for you to become involved in research and shape the direction of the Scottish Dementia Clinical Research network. This will be followed by an informal drop in session with opportunities for you to discuss any carers’ issues that you would like to raise
To book a place, or for further information, please contact Laura McCulloch on0141 404 0233 or firstname.lastname@example.org
For more information, please contact:
Laura McCulloch on 0141 404 0233 or email email@example.com
Dementia Carer Voices project outline
Dementia Carer Voices
If you have experience of caring for someone with dementia you can contribute and have your say on your hopes and concerns for the future by visiting http://www.surveymonkey.com/s/V7SYL2G
Monday, 28 October 2013
with the inspiring Sam Majumdar
Sunday, 27 October 2013
I Will be travelling through to Dundee on Monday to meet with Morag patient safety development manager Ninewells Hospital along with some other teams who work in acute care - clinical lead OPAC -the programme director- and Programme manager
I met with Morag briefly a few weeks ago when I was up in Dundee speaking at the care inspectorate development days
we are meeting this week chat in more detail about the Dementia Carer Voices project and future possible engagement
Morag has kindly arranged a few talks for me in December
Friday, 25 October 2013
Scotland's National Dementia Strategy 2013-2016
Post Diagnostic Support
- Resource Mapping Template
- Resource Mapping Template Guidance
- Draft Driver Diagram
- Draft Driver Diagram Guidance
- Service Redesign Self-Assessment Tool
- Costings Tool
- Costings Guidance
Dementia Demonstrators Interim Report
Dementia Strategy 2013-2016: Proposition Paper
Progress on Implementing the Dementia Strategy
Standards of Care for Dementia in Scotland
- Promoting Excellence: A Framework for all Health and Social Care Staff Working with People with Dementia, their Families and Carers
Improving Diagnosis of Dementia
Improving Support for People with Dementia and their Carers
Improving dementia care in general hospitals
this morning Irene Oldfather and myself will be attending Carers Scotland annual carers summit Glasgow City Chambers
the theme of the summit this year will be welfare reform
Wednesday, 23 October 2013
with great thanks to Margaret Connolly Lead Nurse Specialist & Advanced Practice-practice Development GGC for inviting me to speak at the Surgery & Anesthetics Sharing Good Practice Conference 1st November 2013 Beardmore Conference Center
I look forward to speaking about my wonderful mum ,dementia ,caring the letters I receive and the people I meet on my tour
Tuesday, 22 October 2013
Where memories go Sally Magnussons memoir a familys love for a motherand manifesto for social change
I am travelling to London today ,in fact on the train Just now to attend a meeting for a possible new project for 2014 .A project that I am very excited about and fingers crossed might happen
So a long day on trains got the 8am train this morning arrive in London lunch time for a 2pm meeting then straight back to Euston for the train home to Glasgow
I can't at this time say to much about the idea - project but with some luck if this happens it will allow me to raise awareness to more people than ever before
So fingers crossed and hoping for a good meeting and day
Monday, 21 October 2013
19th meet - reporting Cab Secretary Health Alex Neil Parliament
25th - Speaking Royal Alexandria Hospital.
26th - Attending NHSGG&C FTFT Awards. Nominated NHS ambassador award
1st - Awared the Age Scotland influence and Campaigning 2013 Jess Barrow award
2nd - Speaking Alz society Cardiff conference via Sarah Rochia Older Peoples Commissioner Wales.
3rd - Speaking at Hannah Mackay Productive Ageing Summit.
7th - Speaking to Lead Nurses Cohort 12 Conference.
8th – Speaking in Leeds at Mount hospital
17th – Speaking to Carers Link.
23rd- Speaking at SPAEN AGM Coatbridge College.
31st Speaking Gartnavel General
1st - Speaking at NHS Conference Beard-More Hotel.
6th – Speaking at Victoria Infirmary.
5th - Speaking Glasgow Royal Infirmary
6th - Nominated for Scottish Health Awards (Evening Event).
8th - Speaking at Monklands Hospital NHS Lanarkshire.
11th - 14th - 4 day tour for NHS Highlands (6 talks over 4days).
19th- Speaking Glasgow Royal Infirmary
26th -Speaking Glasgow Royal Infirmary
03.12 - 05-12 3 day tour for NHS Tayside.
talks January to mid September 2013
17.01 Victoria Infirmary
05.03 Southern General Hospital
09.04 Southern General Hospital
16.04 Southern General Hospital
23.04 Southern General Hospital
30.04 Southern General Hospital
11.06 Glasgow Victoria Infirmary
02.07 Vale of Leven Hospital
03.07 Royal Free Hospital London
09.07 Vale of Leven Hospital
01.08 Glasgow Royal Infirmary
27.08 Glasgow Royal Infirmary
03.08 Glasgow Royal Infirmary
17.09 Glasgow Royal Infirmary
Conferences / Other
22.03 SDCRN Annual Conference
19.04 Alzheimer Show London
19.04 Camden Council DA Event
21.04 Improving links in Primary Care Meeting
01.05 ALLIANCE Annual Conference
30.05 Person Centred H&C Conference
20.06 RCN Scotland Board
21.06 NHS GGC Releasing Time to Care Event
04.07 Health Education East of England Staff Development Day
08.08 NES/ SSSC Dementia Programme Board
10.09 Care Inspectorate Staff Development Day
11.09 Care Inspectorate Staff Development Day
16.02 Glasgow Caledonian University
19.02 Glasgow Caledonian University
12.03 Glasgow Caledonian University
04.06 Dundee University
05.08 Dundee University
08.08 Dundee University
17.09 Glasgow University
05.03 Cardonald College
11.03 Cardonald College
15.03 Ayr College
28.03 Reid Kerr College
07.05 Reid Kerr College
19.02 South Ayrshire Carers Dementia Awareness Day
26.02 ‘Making Life Easier’ Event Murrayfield
14.03 Lockerbie Carers Dementia Group
22.03 SDCRN Annual Conference
19.04 Alzheimer Show London
19.04 Camden Council Dementia Awareness Event
01.05 ALLIANCE Annual Conference
02.05 North Ayrshire Council Carer’s Strategy Event
09.06 BBC Radio Scotland Sunday Show Interview for Carer’s week
18.06 Presentation to Sainsbury’s staff Prestwick
20.06 ALLIANCE Involvement Networking Event
11.07 Glasgow North East Carers
31.07 Glasgow North West Carers
Irene Oldfather and myself had a very positive meeting earlier today with Heather a dementia lead with the care inspectorate
we had good discussion covering many subjects along with a sneak preview of my filmed talk from the carer inspectorate staff development day
the film once ready will be available on line via the Care inspectorate web site and used by staff
very grateful and honored for my talk to be used so a big thank you
Alliance - Viewpointon the Scottish Government’s Learning Disability Strategy, “the Keys To Life”: -Link to Piece
Sunday, 20 October 2013
Saturday, 19 October 2013
just don’t know what to do with myself
I have two years to work on my Dementia Carer Voices project, based on my Tommyontour campaign that I started from my bedroom whilst caring for my wee mum. A campaign started with a broken and lost heart. I am grateful for the opportunity to continue to improve and increase the awareness work done from home and during my respite hours. I am thankfully very busy with some I believe good projects and opportunities to both be involved in and raise awareness.
Its Saturday today and like every other weekend and evening since mum passed away I just don’t know what to do with myself. My mum over the last five years became my best pal we shared the struggles and the joy. The truth is each other was all we really had. I Knew I would miss mum but I never thought it would be this hard this often. 5 years of loneliness, isolation and social exclusion has knocked the stuffing out of me, the thing is I could take it when mum was here; we had to in order to get by.
What happens when in need of long term care or caring that as a society we too often look the other way. Dementia brings so many challenges on its own, we need to do more to tackle all the other struggles that can play such a prominent part. I know how to campaign, well I hope I do, I just don’t know how to fit back into everyday life. My life before caring was constantly travelling and social occasions, now I have no clue, and really don’t know where to start. The loneliness we faced over the last 5 years was in many ways a rehearsal for how lonely life is without my wee pal, my mum and like every other weekend or evening I just don’t know what to do with myself.
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